National Hospice and Palliative Care Organization’s “Moments of Life: Made Possible by Hospice” campaign helping to dispel hospice myths and educating the public about choices we all have when facing a life-limiting illness.
The National Hospice and Palliative Care Organization “is thrilled” to release a video translated in Mandarin Chinese highlighting hospice care and how it can help patients and families. “The Journey of Grandma Luk” is part of the “Moments of Life: Made Possible by Hospice”, a national public awareness campaign created by NHPCO to help the public understand how hospice and palliative care supports patients and families. Hospice helps with an array of end-of-life issues to ensure patients live as fully as possible, despite a terminal illness. Hospice also helps families during and life-threatening illness and the aftermath.
There are many hospice stories. This story features an 88 year old Chinese- born matriarch named Sheung Lung Luk. Grandma Luk, as she came to be known, received hospice care after being diagnosed with terminal lung cancer. It was under the care of MJHS Hospice and Palliative Care that Grandma Luk’s pain was stabilized and she was able to enjoy doing the things she loved most, despite her diagnosis. As seen in this story, the family was particularly relieved to have the support of a hospice nurse who could communicate with them in Grandma Luk’s native language, Mandarin Chinese.
This video is the first in the campaign to be translated in Chinese, and is now showcased on the “Moments of Life” website. The decision to add Chinese resources is part of a larger diversity initiative at NHPCO. As shown in NHPCO’s Facts and Figures, “Patients of Minority (non-Caucasian) race accounted for about one quarter of hospice patients in 2014.” Many hospices do not have the staff to address all the different languages spoken in the United States. To support the work of hospice providers, a newly-revised version of NHPCO’s Chinese Outreach Guide is now available online, free of charge. The guide outlines key principles and insights to help hospices better serve this diverse community. Additional resources made available for Mandarin Chinese speaking families include brochures on Hospice, Palliative Care, Understanding Advance Directives, Understanding the Dying Process and There is No Right or Wrong Way to Grieve After a Loss.
NHPCO Senior Vice President of Education, Access, and Philanthropy, Diane Hill Taylor, explains that “NHPCO is committed to expanding access to hospice and palliative care to all. As part of our diversity initiative, we continue to address the health disparities that too often result in too many individuals from diverse communities who never get to choose quality end of life care.” Campaigns such as this will ensure more is being done to help those in need. Hospice patients and their families deserve the very best as there is often not a second time to get it right.